Patient and Family Advocacy Groups
When Maggie was just a few months old, I attended a cystic fibrosis education night put on by the local CF patient and family advisory group that I didn’t know existed until that night. Not only did I learn about CF and how our local CF clinic compares to others across the country, I found a way to turn the pain from Maggie’s diagnosis into a new purpose. That night, I signed up to join the group, and have been attending the monthly meetings for over a year. It was one of the best decisions I could have made. I … Continue reading